A Family’s Story of Love, Loss, and Living with Stargardt Disease
By Puja R. Naik

How do you hold on to hope when the world fades before your eyes?

When rohan, a bright and curious five-year-old, begins to struggle with reading, his parents believe it’s just a phase. But as the letters blur and his smile dims, they are thrust into a reality no parent is prepared for: Stargardt disease—an inherited condition that gradually steals vision, and has no cure.

Unseen Light is a deeply moving, true-to-life novel that follows a family’s emotional journey as they navigate diagnosis, denial, guilt, and grief. Through quiet nights of silent tears, the strength of a father who hides his despair, and a mother haunted by helplessness, this story reveals how love endures even in darkness.

With the support of teachers, friends, and unwavering parental courage, rohan begins to adapt. And just when the weight of it all feels too much, a second child brings new fears—along with a renewed sense of purpose and hope.

This story is for every parent who has ever feared the unknown, and every child who teaches us to see the world differently.